Archive for pain

25 March 2013: Fragment of an Agon

Posted in Uncategorized with tags , , , , on March 24, 2013 by spinoza1111

Real agony as painkiller wears off. While it is “fun” to search for new positions and new breathing patterns, I may have been downplaying the pain. I am hoping that the second round of chemo helps.

I get a base amount of morphine, which is rather high, using a patch thru doctor’s supervision and then I can ask for more. As long as the requested dosages won’t kill me they are given. I was concerned that the patch might cause an allergic reaction but it hasn’t: I even forget where the patch is. Unlike the original nicotine patch, this morphine patch is like a second skin. It delivers timed dosages of pain relief invisibly.

“Agony” is an extreme word but for me it links to tragedy where in ancient Greece it was an “agon” or goat-song.

Relaxation exercises learned from Hanoi Jane (Fonda): scrunch up your face in a frightening grimace, and then offer up your pain to all-ruling heaven and simultaneously release the face.

For butt pain do ab and butt tightening, and, to release butt pressure, gently raise yourself.

Workout 24 Jan 2012: O Voyager

Posted in Uncategorized with tags , , , , on January 24, 2013 by spinoza1111

20 minutes steady and intense rowing machine movement and a nice bath: on the downside, bad news on the cancer front.

The lassitude and reduced appetite I’ve felt over the past week at Grantham may not be due solely to too much bed rest. The cancer manifestation has returned with high PSA levels, in addition to lassitude and reduced appetite. Cancers tend to figure out our treatments in a systematic stepwise way. The next step for me may be chemo, or a sudden lifting of the hormone barrage (daily flutamide, and Leuprorelin Acetate injection every three months) which in some patients, surprises (?) the cancer cells so they diminish in number and strength.

I had great hopes for a hormone barrage even as WWI infantry were cheered by real barrages only to find that there were plenty of enemy left and they were pissed off. The cancer response may be, strangely, similar.

The complexity of cancer’s response is fascinating and Kantian-sublime to the philosopher even if the cancer is attacking him. The incurability of the disease, along with reports of people who at death’s door then survive like the Fisher King, with the Peacock’s beak poised to slay them, teaches us not, in Kant’s words, to build our hopes and fears on vanity; Kant had seen the consequences of such construction in the Lisbon earthquake of 1745.

As Doctor gave me this news I was seriously waiting for the fear to kick in but only felt my usual pain in the butt, the PITB that’s been my constant companion for several months, like the Companions of the Ritter (Knight) in the Durer engraving, Todt (Death) and Teufel (Devil). I only found my smile, my disgusting, long-suffering, Eric-or-Little-by-Little smile as I try instinctively to charm females with me being so brave and all. So where’s my Panic Room, and where does my true self emerge?

Durer Ritter Todt undt Teufel

Well perhaps my true self might be that smile and the Rager my father or more precisely a manifestation, and a singularly unfortunate one, of my Dad. I myself hate the Rager too.

As I was writing this the handless nurse dumped a glass of cold water on me by accident. The whole secret of life seems to be in how you react to something like that. There is a deeper meaning, for me anyway, in “the gates of Hell shall not prevail”.

…and as I was revising this the handless orderly dropped a mini cup of that damnable laxative that tastes vile and does not work on me. I used his error, however, to snag some alcohol pads useful for hand cleaning.

This tendency to be on balance reasonably cheerful could be just morphine’s euphoria. But I don’t think so, for endorphins have the same effect and the saint has her endorphins when she calls to mind the Noble Truth: that in suffering is the release from suffering at least for the purged.

Heavy matters. But you sure can construct a nice little Limerick based on those three words, morphine, endorphin and euphoria:

A disgusting old chap of Albania
Said, this Morphine gives me no end of Euphoria
But should I run out
I shall be Stout
And run about to generate Endorphins in Albania

Besides, I am on prescribed dosages. They are high as witness my tendency to get nauseous, and I don’t know how hopheads push the dosage to start seeing things…although my visions last Oct were benign when I used improper dosages I certainly don’t want to go back to that confusion.

Doctor allayed my fears about chemo as has Dr Siddharta Mukherjee in his excellent recent book about cancer and its treatment. Our media view of cancer is formed by the treatment of patients prior to 2000 such as Gilda Radner, and their sufferings under crude chemo which does try to destroy the weaker cancer cells by attacking all cells. The thought of getting this type of chemo, BARFOLA or something like that, as an out patient and then a jolly ferry ride o’er the billow with me spewing me guts windward is itself barfoprogenetive.

Thinking philosophically about pain seems a useful way to endure at least mild pain. Pain is not “sense data” because pain is incommensurate with sense data in that pain seems to be a type of knowledge. But there are even types of pain incommensurate with other types of pain, most famously, nausea. I believe Wittgenstein deals thoroly with these conundrums in Philosophical Investigations. Might be worth a reread as opposed to idle speculation and reinventing the wheel.

But precisely because of the suffering of Ms Radner and many other chemo patients, since 2000 many less intense and less barfy therapies have been introduced. The key ratio m/n is m=number of days on chemo and n=number of days off and so we focus on reducing that number. I think that further, n could be analyzed into g+b: “good” days without cancer symptoms and “bad” days so we could also reduce b. The “sweet spot” in m/(g+b) would be m and b equal to zero, of course: nothing but g. We could then evaluate treatments as to how close they came to m and b=0. Of course, I would do this only for myself on entering chemo-land; I do not know if it’s already in use.

But, “them helpis no conclusionis slee” as Dunbar says of “surrigianis”, “art-magicianis” and “astrologgis”: so,just like him, I have to trust in God when all is said and done:

Sith for the deid remeide is none
Best is we for death dispone
After death that live may we!

Details at eleven: we have to Turn It Over. We’re not constituted any other way. To be reassured is to need further reassurance, so we need to take the first reassurance and then act or be still as the situation warrants.

“O voyagers, O seamen,
You who came to port, and you whose bodies
Will suffer the trial and judgement of the sea,
Or whatever event, this is your real destination.”
So Krishna, as when he admonished Arjuna
On the field of battle.
Not fare well,
But fare forward, voyagers.

TS Eliot

Workout 14 July 2012: Absent thee from felicity awhile

Posted in Uncategorized with tags , , , on January 14, 2013 by spinoza1111

Unknown Helper Face-Off

Edward G. Nilges, Angels Spread Rumors of Angels, pencil, pen, computer modifications. (C) 2012 Edward G. Nilges. Moral rights asserted. That is (das ist) it’s “fair use” if you like my art and print it as I do on a color printer and then frame it, hanging it in your room (but you can also email me and I’ll sign and frame an original for a couple hundred dollars). But it is not fair to use this image on your CD even if your music sucks and you don’t sell a single disk. In such ventures get in touch with me at spinoza1111@yahoo.com

A pathetic workout in the physio room since it took place too soon after breakfast; approximately ten minutes arm pulls and leg pushes.

Another week with no discharge date and not much improvement in my ability to mosey around Grantham which bodes ill for a successful return to my Lamma home. I lay abed, or occasionally crouch and scuttle with my cane (a “walking stick”, I’ve discovered, in British English) to the convenience store or garden whilst groaning like my Dad when I cared for him. It ryalleh hurts as when Chahlie bit me and it’s still hurting…

Ah, ai-YAH, people fear this and make this, for me, a sudden collapse in my powers, a reason for not celebrating the joy I felt running in Paris, but that is such nonsense and to me a sin against Creation.

Ideally I’d move out of this hostel to a halfway house or monastery where I’d live communally and seek clarity through labor: until my butt heals, writing and perhaps programming, and then agricultural work. My old life (solitary in an apt) was the problem, I need to be with others and make a contribution.

I’m afraid that if I go back to my old life that that will simply cause me to develop another problem requiring readmission to Queen Mary. A typical urban death like that of a divorced father living conveniently above O’Toole’s on Dearborn. Who discommodes nobody anymore.

Pain as I think Wittgenstein said is always private, and while we can compare a pain with our previous pain, I have no way of now how bad the other’s pain is in an absolute way. I can use empirical signals: for example, a United States airman, critically burned all over his body in a crash over North Vietnam, gripped the solid steel railing of his bed while his massive burn was being “debrided” (removing dead tissue) in such a way as to leave the impression of his fingers In the solid steel. I doubt that I would have the heart to allow the debridement to proceed at least without painkillers that would not allow me to remember that I’d marked the steel.

My pain “probably” less than the pain endured by burn victims such as this guy, and note that it is an interesting conundrum, for philosophers only, that it’s meaningful to make this “empirical” assertion (that my pain is probably not as bad) but that assertion is unverifiable.

But such enquiries aside I’d hypothesize, with no way of confirming or refuting it, that women are better with pain. My former wife endured 24 hours of labor in childbirth and my only comparative experience would be a couple of weeks ago and straining to poo while constipated.

In Hong Kong aging shop clerks stand for 12 or more hours with their own edema or deep vein thrombosis and they dare not complain for fear of losing their jobs…there is a disability plan here but it pays little more than 200 US dollars a month: with that you’re not even “talking” a room at the Chung King Mansions: you’re “talking” a wire cage.

But as my late son once Tweeted, self-imposed austerity fascinates and attracts me as it did him: my late son told me I need not be the Stoic while he himself had his Mom as a role model for self-denial.

My son knew that I wanted reunification with his Mom and that insofar as I did not pursue this Einigkeit I denied who I was … for I think my son had read in Žižek that the saint is she who does what she *really* wants.

My son did learn a valuable lesson from me and my credit cards: that in California it’s fun to eat a lavish meal (a big pizza, say, with Cokes for the kids and cheap wine for me, with Caesar salad up front and chocolate cake for dessert to follow, out of doors on a gorgeous late afternoon). To spin around Silicon Valley in my new Ford Escort with me popping the clutch and driving too slow. To go to Fry’s Electronics and nerd out on Saturday morning.

I think that the reason why this stuff seemed so fun in Silicon Valley and not in Chicago was that the weather in Chicago was always God’s Judgement on a Wicked City, and as such questioned why you needed to trudge to the computer store or Chuck E Cheeze Pizza Time Theater. Whereas California’ sunshine always said, let’s GO.

I may have to get used to the simple idea that accomplishing simple errands such as going out for groceries or a sandwich from the Lamma Grille (yum) might just be hard. To get groceries or a Snarfburger, I may have to draw my breath in pain even as Hamlet admonished Horatio:

Absent thee from felicity awhile,
And in this harsh world draw thy breath in pain…

They told me in rehab in 2000 that “acceptance” is the key to my problems, the fulcrum around which I spin saying at first this I cannot accept and then saying “thy will be done” (fiat voluntas tua) when pitched into space by the problem, like Goofy on the ski-jump. But Acceptance here is a big job. I was doing great until my brother called last September, saying sit down and chill out, I have bad news.

I’m angry with my poor son perhaps because he played, structurally, the role of my wife, his Mom, to my sang-froid and to my bouncy response, to my father when my father said back in the 1990s that I was “whistling in a graveyard” when in response to joblessness I was cheerful..as if you don’t, in my experience, need sang-froid when looking for work.

And even more when your doctor says “I don’t have good news”. Sang-froid, not Sangria although the latter might be indicated for those of us who can handle Sangria!

I was doing great in the summer of 2012 and my son, by taking his own life, poured very cold water all over what I’d accomplished just like his Mom or grandfather. The manic element in my bloodline is always targeted, perhaps at the genetic level, by the depressive element.

Where is there an end to it, the soundless wailing,
The silent withering of autumn flowers
Dropping their petals and remaining motionless;
Where is there an end to the drifting wreckage,
The prayer of the bone on the beach, the unprayable
Prayer at the calamitous annunciation?

There is no end, but addition: the trailing
Consequence of further days and hours,
While emotion takes to itself the emotionless
Years of living among the breakage
Of what was believed in as the most reliable -
And therefore the fittest for renunciation.

TS Eliot, The Dry Salvages, Four Quartets

Listen!

Workout 3 Jan 2012

Posted in Uncategorized with tags , , , on January 2, 2013 by spinoza1111

10 mn: five mn walk and 5 mn leg exercises. In significant pain and took 30 mg morphine sulfates as a result but I am afraid that for now I shall have to work through pain, since the atrophy has been severe and raises the spectre of a boy in a cart as opposed to what I once was. I don’t wanna spin around in a cart.

I need to be reunited with my hand weights in my flat in order to do more upper body work.

Cellist of Sarajevo

Posted in Uncategorized with tags , , on November 4, 2012 by spinoza1111

The burned the blinded the blasted and insane
Though reduced to Troglodytes did crawl away from pain
And attended they to music in a city that was broken
In the brief light of truce although the other side was jokin’.

The burned the blinded the blasted and insane
Well, they turned the other cheek they would not be Cain
Sacrificed by their own leaders to mobilize attention
They became invisible, a scandal, a thing you do not mention.

Good Morning WordPress

Posted in Uncategorized with tags on November 4, 2012 by spinoza1111

LISTEN!

No pain, no pain at all.

Hey! More pain!

Posted in Uncategorized with tags , on November 2, 2012 by spinoza1111

Listen!

After a night of such fierce pain, a bright forest morn! – Parsival

The sun floods the room. But last night I went outside to the hall to scream and cry, and not bother the other guys. Incessant pain. Also the chairs in the hall are hard and straight and this relieves pain a little.

But less pain now.

More pain

Posted in Uncategorized with tags on November 1, 2012 by spinoza1111

Listen!

Lost in a Roman wilderness of pain, and all the children are insane.

What helps now: exercising my autonomy. They don’t want me to sit and weep in the hall where at least it is warm and the pain goes away. So I do, and then go to DeliFrance again. Where the pain also goes when I drink green tea.

Pain

Posted in Uncategorized with tags , on October 15, 2012 by spinoza1111

A savage pain that rages that makes you go when is now
Are we there yet and where is there, anyhow.
Oops, take the medications NOW and hang on tight
Looks like it’s gonna be an awful night
May God have mercy upon us all
For upon us the pain doth fall.

Workout 26 Sep 2012: the pain in Spain and other places

Posted in Uncategorized with tags , , on September 27, 2012 by spinoza1111

NO workout.

Listen!

Reconciliation with family members as we shared our memories of that bright spirit, Edward Arthur Nilges.

Now nothing but pain physical and mental. I did find a cane and it helps me walk.

When you’re in pain
There’s nothing like a cane
Father son and holy ghost
With this cane I defy hell’s great host
And in pain
I shall remain
To bear witness to this “human stain”

Follow

Get every new post delivered to your Inbox.

Join 51 other followers